PEDIATRIC CANCER PRIORITY SETTING PARTNERSHIP

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About this project

 
Individuals affected by cancer asking questions.

What inspired this project? 

We started this project to create a new childhood cancer research agenda. This agenda will focus on patients,' caregivers', and clinicians' voices.

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Who are we? 

We are a team of patients, survivors, clinicians, and researchers from across Canada. We are working to create a relevant and new research agenda for childhood cancer.

Individuals collaborating at a desk.

What is a "PSP"?

A "Priority Setting Partnership" is a project that finds patients', caregivers' and clinicians' unanswered questions about childhood cancer. The top ten unanswered questions will form a new research agenda. 

 

Participate in the survey

Are you a patient with cancer, a survivor of childhood cancer, a caregiver for a child with cancer, or a clinician in this field?

 

What you think matters. 

This is a chance to influence future research in the field of childhood cancer. Please take 10 minutes to answer this survey. Together we can support pediatric cancer patients, changing the quality of their life with revitalized research priorities.

Meet the team

 
Photo of Dr. Lindsay Jibb

Project Lead

Dr. Lindsay Jibb, a Certified Pediatric Hematology/Oncology Nurse, holds the Signy Hildur Eaton Chair in Pediatric Nursing Research at The Hospital for Sick Children and the University of Toronto. Her research program is broadly focused on enhancing quality of life and improving psychosocial care for children, adolescents, and young adults with cancer and their families.

Photo of Tamara Rader

Project Chair

Tamara has been a Patient Engagement Officer with the Canadian Agency for Drugs and Technologies in Health (CADTH) since 2015.  She enjoys listening to people with lived experience from across Canada and finding ways to involve them in CADTH’s projects. Tamara joined the James Lind Alliance team in 2019.

Photo of Alyssa Chee-a-tow
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Project Coordinator

 

Alyssa Chee-a-tow is a Clinical Research Coordinator working under the supervision of Dr. Lindsay Jibb at the Hospital for Sick Children. In her current role, she contributes to several research projects in the Jibb Lab focused on the development and evaluation of eHealth and mHealth interventions for patients and caregivers.

Dr. Lindsay Jibb

Tamara Rader

Alyssa Chee-a-tow

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Steering Committee Member

Dr. Morgenstern is a pediatric oncologist at The Hospital for Sick Children in Toronto specialising in the treatment of patients with neuroblastoma. He leads the hospital’s oncology early phase trial program and is Medical Director of the oncology Clinical Trials Support Unit.

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Steering Committee Member

 

Dr. Whitlock is the Division Head and Women’s Auxiliary Millennium Chair in Haematology/Oncology, the Director of the Garron Family Cancer Centre at The Hospital for Sick Children, and a Senior Associate Scientist in the Translational Medicine Program at SickKids Research Institute. His research interests include the biology and treatment of childhood acute leukemias and histiocytic disorders and the development of new drugs for the treatment of childhood cancers.

Photo of Adrienne Co-Dyre

Steering Committee Member

Adrienne Co-Dyre is the proud mom of 10 year old Gabby, a 3x leukemia survivor, and a fierce advocate for pediatric cancer patients and families.  Adrienne is an Academic Library Director with almost 20 years of experience running academic libraries, research services and programs.

Dr. Daniel Morgenstern

Dr. James A. Whitlock

Adrienne Co-Dyre

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Steering Committee Member

Geoffrey was diagnosed with Myelodysplastic Syndrome in 2015 and is a Patient Ambassador for The Hospital for Sick Children. He is passionate about improving the oncology pediatric research priorities and helping improve the lives of children with cancer.

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Steering Committee Member

Helena is a leukemia survivor and the founder of Helena’s Hope, an advocacy group with a mission to create a National Childhood Cancer Strategy, systems changes, and research funding. Helena was the 2017 Children's Miracle Network Champion and the 2019 Ontario Junior Citizen Award recipient. 

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Steering Committee Member

Sarah Calderwood is the proud Mom of Helena Kirk and together they are the Co-Founders of Helena's Hope which has a mission to find pathways for more Canadian children to survive cancer. Sarah owns Stirling Marketing & Communications and has over 20 years’ experience in the health sector.

Geoffrey Fang

Helena Kirk

Sarah Calderwood

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Information Specialist

Lily Ren is a medical librarian with experience in supporting literature reviews, systematic reviews, meta-analyses, and other publications. She currently works as a Research Communications Librarian at the Lane Medical Library at the Stanford School of Medicine, Stanford University.

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Steering Committee Member

Perri Tutelman is a senior PhD student in Clinical Psychology at Dalhousie University. Her research is based at the Centre for Pediatric Pain Research at the IWK Health Centre with Dr. Christine Chambers. Perri’s clinical and research interests include pain in pediatric oncology, the role of families, and patient engagement in research. 

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Steering Committee Member

Antonia entered the world of cancer in 2009 when her two-year-old son was diagnosed with stage IV high-risk neuroblastoma. She is the co-founder of Advocacy for Canadian Childhood Oncology Research Network (Ac2orn), founder of Neuroblastoma Canada, and the pediatric community member for the Ontario Cancer Research Ethics Board (OCREB).

Lily Ren

Perri Tutelman

Antonia Palmer

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Survivor & Clinical Nurse

Rachel Hamilton is a pediatric oncology nurse at SickKids in Toronto. She works as a Clinical Research Nurse Coordinator at SickKids, researching pediatric oncology and eHealth. Rachel is a pediatric cancer survivor, having been diagnosed with ALL at age 7, bringing together the lived experience of childhood cancer with clinical expertise.

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Steering Committee Member

Caroline is a momcologist, advocating for better childhood cancer outcomes and long-term survivorship. She provides health policy support to Helena’s Hope. Caroline has a Master of Health Science from the University of Toronto and is a Registered Dietitian. Her expertise is in health policy and program planning, focusing on equity and social determinants of health

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Steering Committee Member

Kathy Brodeur-Robb is the Executive Director of C17 Council, the Canadian pediatric hematology/ oncology network. She leads an office responsible for regulatory oversight of 270+ clinical trials, working with 16 North American and international academic cooperative groups. 

Rachel Hamilton

Caroline Wai

Kathy Brodeur-Robb

Collaborators

Helena's Hope Logo
James lind alliance logo
Advocacy for canadian childhood oncology research network logo
Ontario parents advocating for children with cancer logo
CIHR IRSC Logo
Children's cancer and blood disorders logo
Kids cancer care logo
Childhood cancer survivor canada logo
Pediatric oncology group of ontario logo